Well this has been a week for good news on the old hospital front.
I had an appointment with my consultant and specialist nurse on Monday, to follow up the one I had missed in half term.
Recently, as I have explained, I am currently suffering from a lot of pain in my left knee which I automatically thought was arthritis back for the vengeance again, but alas it is not, which is really good. However that does leave somewhat of a question mark over what it might possibly be.
Back to the actual appointment, I was all checked out with various bending and pulling about to see what the mobility of my joints was like, and apparently 'although I am slightly restricted in both my hip joints, I am otherwise well'. Dr Armon, who is (well was) my consultant, said that she was happy with how I am and thinks that the pain I'm feeling has nothing, NOTHING, to do with my arthritis. We did ask about the problems that I have been having with the methotrexate and she did what all doctors do when there is a problem they're not sure about, CHUCK PILLS AT IT... WOO! So I've now been prescribed a months worth of anti-sickness drugs and see how that goes. I'm happy with doing that if it will works, anythings got to better than throwing my guts up every week. Also, she thinks that I can come off the metho by June which is awesome and, I must admit, as I sat there when she was telling me this I almost shed a few joyful tears. I have on the stuff long enough and it is a VERY big relief to finally be free.
At the end of my appointment, they decided it was time for me to finally grow up and move on to the adult side... also known as the dark side... so as Dr Armon hastily shook my hand and wished me well tears started to well up in her eyes. Bless... I do like to leave my mark.
The liver thing was nothing, by the way, wasn't even that much to worry about... which is also a massive relief.
Hmm... think thats everything covered on the hospital front... damn good!
Schools all good and in full almost exam mode in art and drama. Eeep!
I'll be able to report back on that this time next week when my practical drama exam will be all over.
Thanks for reading x
Thursday, 28 February 2008
Tuesday, 19 February 2008
Extreme pain...
Well... I've been back at school for almost a week now and its beginning to take its toll. I now really notice how tired and run down I get when I'm doing full days at school but all I can do is carry on and drink lots of coffee!
Just been up the school this evening for my parents evening and, by the sounds of it all is good in the world of my education. Everyone is happy with my progress and no one thinks I'm wasting my time. However, the problem is, my Dad made a very valid point. Very soon it will be time for me to start looking for a college or uni and when I think about this I will have to consider what I would do about my drugs. I am currently being injected by my Mum, I did used to do it myself but I found this very difficult, so when I go to college I would have to think about this and hopefully get back to injecting myself. If not I'll be living at home forever, which will not be happening!
Injection was particularly bad this week. I got a little bit upset about the whole thing because, to be honest, I do usually bottle every thing up which means when I do let it out, it comes out in a big way. I was also quite violently sick, which didn't help, but thats basically the norm nowadays for me. Now my parents have finally had enough of all this and are looking into a hypnotist. Worth a try. Just got to put it past my nurse now to see what she thinks.
Still don't know any more about that problem with my blood test but when I do I will definitely put it down on here.
Thanks for reading x
Just been up the school this evening for my parents evening and, by the sounds of it all is good in the world of my education. Everyone is happy with my progress and no one thinks I'm wasting my time. However, the problem is, my Dad made a very valid point. Very soon it will be time for me to start looking for a college or uni and when I think about this I will have to consider what I would do about my drugs. I am currently being injected by my Mum, I did used to do it myself but I found this very difficult, so when I go to college I would have to think about this and hopefully get back to injecting myself. If not I'll be living at home forever, which will not be happening!
Injection was particularly bad this week. I got a little bit upset about the whole thing because, to be honest, I do usually bottle every thing up which means when I do let it out, it comes out in a big way. I was also quite violently sick, which didn't help, but thats basically the norm nowadays for me. Now my parents have finally had enough of all this and are looking into a hypnotist. Worth a try. Just got to put it past my nurse now to see what she thinks.
Still don't know any more about that problem with my blood test but when I do I will definitely put it down on here.
Thanks for reading x
Sunday, 17 February 2008
My First Post
This blog has been created so I can write down how my condition, juvenile psoriatic arthritis, makes me feel and make it easier for the people around me to understand exactly what I'm going through. I often have my boyfriend and family trying to relate to me and then they always say how they feel they can't because they have no idea what its like, maybe this will help.
Now, it's not going to be all doom and gloom, I'm usually cheerful as I try to not let what I'm going through get to me but its always good to let it out on a page.
Basically, I have had poly-juvenile arthritis since I was 2. I have lived a reasonably normal life like any other child but I have odd flare ups which vary in their severity. I am 16 and currently going through a long flare up.
I have to inject, well my mum does, every week into my thigh and I've been doing this for over a year now (so I'm starting to look like a bit of a pin cushion!) and take 2 pills daily. This isn't too bad as when I was 7 I was on 6 different drugs and it was a bi of battle to get me to take them because, like any normal child, I didn't want to take something which tasted weird or was just basically a chore! Tuesday is my Doom Day because it is the day when I have my injection. I suffer from some kind of anxiety problem, when I am just about to have my injection I panic which often results in me being sick... not good. This has been happening for a while and now my parents want to try different things to stop the sickness, even hypnosis. I'll keep it posted about how that goes.
Recently I have just had a MRI scan and luckily the results came up as clear, but this also means that the problems I've been having with my hips, the newest joints to become affected, must arthritic. On Tuesday I went for a blood test and then Friday I got a call from the hospital to say that my liver function is worryingly high and they want me in to access this as it could be linked to how run down I've been recently. Initially I was quite upset by this because to me it just seems like another problem to add to my list but I guess I'll just have to wait and see.
I know this is quite a long post but its got all the background information in it. I'll try and update every week but at the moment I have a lot of exam work to do but I'll do my best.
Thanks for reading. x
Now, it's not going to be all doom and gloom, I'm usually cheerful as I try to not let what I'm going through get to me but its always good to let it out on a page.
Basically, I have had poly-juvenile arthritis since I was 2. I have lived a reasonably normal life like any other child but I have odd flare ups which vary in their severity. I am 16 and currently going through a long flare up.
I have to inject, well my mum does, every week into my thigh and I've been doing this for over a year now (so I'm starting to look like a bit of a pin cushion!) and take 2 pills daily. This isn't too bad as when I was 7 I was on 6 different drugs and it was a bi of battle to get me to take them because, like any normal child, I didn't want to take something which tasted weird or was just basically a chore! Tuesday is my Doom Day because it is the day when I have my injection. I suffer from some kind of anxiety problem, when I am just about to have my injection I panic which often results in me being sick... not good. This has been happening for a while and now my parents want to try different things to stop the sickness, even hypnosis. I'll keep it posted about how that goes.
Recently I have just had a MRI scan and luckily the results came up as clear, but this also means that the problems I've been having with my hips, the newest joints to become affected, must arthritic. On Tuesday I went for a blood test and then Friday I got a call from the hospital to say that my liver function is worryingly high and they want me in to access this as it could be linked to how run down I've been recently. Initially I was quite upset by this because to me it just seems like another problem to add to my list but I guess I'll just have to wait and see.
I know this is quite a long post but its got all the background information in it. I'll try and update every week but at the moment I have a lot of exam work to do but I'll do my best.
Thanks for reading. x
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