My First Post

This blog has been created so I can write down how my condition, juvenile psoriatic arthritis, makes me feel and make it easier for the people around me to understand exactly what I'm going through. I often have my boyfriend and family trying to relate to me and then they always say how they feel they can't because they have no idea what its like, maybe this will help.

Now, it's not going to be all doom and gloom, I'm usually cheerful as I try to not let what I'm going through get to me but its always good to let it out on a page.

Basically, I have had poly-juvenile arthritis since I was 2. I have lived a reasonably normal life like any other child but I have odd flare ups which vary in their severity. I am 16 and currently going through a long flare up.
I have to inject, well my mum does, every week into my thigh and I've been doing this for over a year now (so I'm starting to look like a bit of a pin cushion!) and take 2 pills daily. This isn't too bad as when I was 7 I was on 6 different drugs and it was a bi of battle to get me to take them because, like any normal child, I didn't want to take something which tasted weird or was just basically a chore! Tuesday is my Doom Day because it is the day when I have my injection. I suffer from some kind of anxiety problem, when I am just about to have my injection I panic which often results in me being sick... not good. This has been happening for a while and now my parents want to try different things to stop the sickness, even hypnosis. I'll keep it posted about how that goes.

Recently I have just had a MRI scan and luckily the results came up as clear, but this also means that the problems I've been having with my hips, the newest joints to become affected, must arthritic. On Tuesday I went for a blood test and then Friday I got a call from the hospital to say that my liver function is worryingly high and they want me in to access this as it could be linked to how run down I've been recently. Initially I was quite upset by this because to me it just seems like another problem to add to my list but I guess I'll just have to wait and see.


I know this is quite a long post but its got all the background information in it. I'll try and update every week but at the moment I have a lot of exam work to do but I'll do my best.

Thanks for reading. x